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This blog is maintained by my sister (Addie White, a memeber of the commitee putting these events on).
I started directing these events a couple years ago, and now the family is all tackling this with increased vigor... below is a picture on the blog...this is why we fight... go read the blurb she has written. If you can look at this picture, read the blurb, and walk away without feeling a bit more grateful for your "everyday"....then you aren't human:)
Remember, our bad days really aren't BAD days in comparison to those with ALS...
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